LITERATURE

Evaluation

GREY LITERATURE

Please click on the link below to access the resource.

1. Effective involvement: a report on the evaluation of a research awareness training package for public involvement in health research

2. Researchers' Experience of Patient and Public Involvement: Measuring Impact of Involvement

3. Reciprocal relationships and the importance of feedback in patient and public involvement: A mixed methods study

JOURNAL PUBLICATIONS

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1. Kendall, C, Fitzgerald, M, Kang Seoyeon R, et al. “Still learning and evolving in our approaches”: patient and stakeholder engagement among Canadian community-based primary health care researchers. Research Involvement and Engagement. 2018; 4:47

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2. Abbasgholizadeh, Rahimi, S, Zomahoun, H, & Légaré, F. Patient Engagement and its Evaluation Tools- Current Challenges and Future Directions Comment on "Metrics and Evaluation Tools for Patient Engagement in Healthcare Organization- and System-Level Decision-Making: A Systematic Review". International journal of health policy and management. 2019; 8(6), 378:380. 

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3. Aubin, D, Hebert, M, & Eurich, D. "The importance of measuring the impact of patient-oriented research". Canadian Medical Association Journal. 2019; 191(31), E860-E864.

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4. Lavallee, D, Lee, J, Semple, J, Lober, W, & Evans, H. (2019). Engaging Patients in Co-Design of Mobile Health Tools for Surgical Site Infection Surveillance: Implications for Research and Implementation. Surgical Infections.

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5. Rahimi, S. A, Zomahoun, H. T. V, & Legare, F. "Patient Engagement and its Evaluation Tools–Current Challenges and Future Directions: Comment on" Metrics and Evaluation Tools for Patient Engagement in Healthcare Organization-and System-Level Decision-Making: A Systematic Review". International Journal of Health Policy and Management. 2019; 8(6), 378.

TOOL

The Public and Patient Engagement Toolkit is a resource designed for health sector practitioners, produced after the completion of a rigorous systematic review of various public and patient engagement evaluation tools. The toolkit comprises of 27 evaluation tools, which are divided based on various levels of measurement, at the organization, patient partner, and project level. The tools are also sorted based on context of engagement, namely health research and health care. Each tool is assessed on scientific rigour, comprehensiveness, patient and public perspective, and usability.

For more information on the toolkit, please click on the button below. 

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Public and Patient Engagement Evaluation Tool (McMaster)

The Public and Patient Engagement Evaluation Tool (PPEET) is 1 of the 27 tools in the toolkit. The tool is structured around four core principles that capture the key elements of quality PPE: i) integrity of design and process; ii) influence and impact; iii) participatory culture; and, iv) collaboration and common purpose. These principles provide the foundation for the evaluation framework and tool, which carefully map each principle onto outcome measures, indicators and sample questions.

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The PPEET is comprised of three questionnaires, each aimed at different end users: i) those who participate in PPE activities; ii) those who plan and execute PPE activities within organizations; and, iii) those who create the vision and build capacity for PPE within their organization.

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The tool has been pilot tested in two organizations by over 250 participants comprising each of the three respondent groups. Revisions have been made to each of the questionnaires as a result, and the tool is now ready to be launched on a larger scale within the health system. The tool is available in both French and English.

The PPEET Project was the winner of the 2014 IAP2 Canadian Research Project of the Year award.

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